Drug Free Week


Drug free, hospital free week was awesome!!!! It almost felt normal. No more PICC lines to flush and no more steroids!!!!! Cooper is still coming down off the steroids...and so are his chubby little cheeks. Everyday he is looking and acting a little more like our Cooper. We got to enjoy some sunshine and get outside. Cooper is still low on energy since his surgery, but hey, he's our playing croquet. We would be laid out on the couch if it were us. He is such a champ. 

We had our family meeting with the doctors to look at the rest of his treatment. Wow...that's one overwhelming situation. We will be finished with this mess October 2021. That feels like an eternity! His active treatment will be complete in April 2019. The doctors were extremely pleased with his day 29 results and it makes the chemo course over the next 6 months a little more bearable. Due to the favorable results he gets 2 interim maintenance phases, which should be easier phases. We have one really ugly phase yet to come, but it could be worse so we are trying to find the positives. 







He even got his light sabers back out! We haven't seen those in over a month. It feels so good to see him playing again.

Getting some work done on the kindergarten curriculum:)



Super Cooper:) Thanks Mollie!







Comments

Post a Comment

Popular posts from this blog

Beginning of the Road

18 Aug 2018 So it begins... There are certain days in your life that you will always remember - wedding day, birth of a child, the day you bought your first home, graduations - you get the idea. Unfortunately not all these dates are remembered for a positive reason... It is with absolute heartbreak that Kristy and I want to let our family, friends and loved ones know that on Aug 18 2018, our son, Cooper was diagnosed with child leukemia.  I cannot put into words how we are feeling or even if we have fully comprehended what this means for us as a family.  As most of you readers probably know, Kristy and I were blessed to welcome Evyn Wylde Trueblood into the word on 15 Jul 2018. So adjusting our lives to a newborn and a family of 4, to now have this news is more than we ever thought we would be able to handle. I am opening this page mainly for three reasons.  First and foremost to remember Cooper in your thoughts and prayers.  Our God is the creator, great healer and more impo
Read more

Last big intensification push: It has begun

Image
So on Friday we did not make counts to start the second part of intensification, so we went in Wednesday and Coop made counts like a boss! It was such a long clinic day, but we were thankful to go home. We were the first ones there and the last ones to leave. We barely got out before they would have had to admit us to inpatient. Luckily this week, Kristy was able to attend clinic with Coop too. Last week she was getting over the shingles and couldn't go to clinic as a precaution to the other patients there. Good old stress induced shingles...Ugh....just what every parent with a baby and an immunocompromised kid needs, right?  Cooper actually got out on his bike during the few days we had after he didn't make counts. We figured if he was asking to go outside, he was feeling much better and we had a pretty good feeling he would get going on Wednesday.  Cooper had the choice to leave clinic and keep his port accessed at home for the home care nurse to come out and admin
Read more

Snacks, Hair, and a Dose of 5 Year Old Perspective

Everyone thinks their own kids are the best. That's every parent's right as their guardian.  We are obviously bias but we can't help but look at our kid in absolute awe with how he is dealing with this situation. Nothing like your 5 year old setting the record straight with a bunch of grownups who feel like they're trying to get their act together. From the beginning we have done our best to be completely honest with Cooper about what is happening to him. Granted, this is a tall order to try to make sure to explain a life threatening disease in a developmentally appropriate way. Those of you who know Cooper well, know that he is a very literal kid, a straight shooter. You'd better be honest with him or he will be the first one to call your bluff if you aren't. It is this wonderful quality that Cooper has that will most likely earn all of his classroom teachers a nice bottle of merlot for Christmas. Cooper is also a very observant kiddo, he's a watcher...he
Read more