Interim Maintenance 2...Like a BOSS


We have had a big 2 weeks here at the Trueblood house, and by big week, I mean the adults got to go to the grocery store like normal human beings! No, that isn't a joke, we've been trying really hard to limit our exposure to the public because of Cooper's ANC at zero and for Evyn being cold and flu season, BUT we really did have a pretty big week with some things that were actually pretty fun. 

Since Coop finished chemo for intensification he has needed several blood and platelet transfusions. So unfortunately the 2-3 weeks "off" at the end of this phase was still filled with hospital visits and long days in clinic. However, we are extremely thankful that even though he was neutropenic, he never got a fever or an infection which is a real win in our book. 

Based on his counts and how low his platelets were as well, the docs didn't think there was ANY way we wouldn't be delayed going into Interim Maintenance 2. We even pushed back Kristy's start date for returning to work anticipating a delay. Not only did he make counts but his platelets recovered fully back to normal range and his ANC was 1100!!!! Coop said "I made counts like a BOSS!!!!" He is constantly surprising us and he has so much bounce back! They have even told us that there is a good chance he may return to school sooner than planned and that we can go out in public and do a few things with some precautions. Cooper can also have some friends over for a play date!

Last weekend the Make A Wish team came out to interview him. He had so much fun with them getting to plan something for when life returns to normal. Cooper's final wish was to go to Disney World. He had several ideas in his "wish box" but that was the final wish he settled on. Once we hear back from the volunteers we will know the plan. 
 Cooper working with the Make A Wish Volunteers.


Cooper also got to be on TV this week! On Monday morning, we got a call that they wanted to do an interview at the house. We had an hour notice before they were coming over because the story had to air at 5:00 that day! Nothing like trying to get this 3 ring circus together for a TV interview between nap times, feedings, home school. YIKES!

Here is the full story from the news if you didn't get to see it!
Casey Cares Interview




Cooper's countdown! Intensification DONE!

IM 2 day 1

Working on our beads of courage. It is a program where the kids get different beads as milestones for various parts of their treatment, pokes, port access, chemo rounds, blood transfusions, clinic visits, PT, etc. Unfortunately Cooper's bead string is quite long, which is sad since it quantifies all he has been through but those beads are winding down! 

We are able to breathe a little deeper and see the light at the end of the tunnel. Cooper had 4 more hospital treatment days in "active" therapy! Thanks for all of the prayers, messages, thoughts over the last 2 months. It was an emotional rollercoaster. 



Comments

Post a Comment

Popular posts from this blog

Beginning of the Road

18 Aug 2018 So it begins... There are certain days in your life that you will always remember - wedding day, birth of a child, the day you bought your first home, graduations - you get the idea. Unfortunately not all these dates are remembered for a positive reason... It is with absolute heartbreak that Kristy and I want to let our family, friends and loved ones know that on Aug 18 2018, our son, Cooper was diagnosed with child leukemia.  I cannot put into words how we are feeling or even if we have fully comprehended what this means for us as a family.  As most of you readers probably know, Kristy and I were blessed to welcome Evyn Wylde Trueblood into the word on 15 Jul 2018. So adjusting our lives to a newborn and a family of 4, to now have this news is more than we ever thought we would be able to handle. I am opening this page mainly for three reasons.  First and foremost to remember Cooper in your thoughts and prayers.  Our God is the creator, great healer and more impo
Read more

Last big intensification push: It has begun

Image
So on Friday we did not make counts to start the second part of intensification, so we went in Wednesday and Coop made counts like a boss! It was such a long clinic day, but we were thankful to go home. We were the first ones there and the last ones to leave. We barely got out before they would have had to admit us to inpatient. Luckily this week, Kristy was able to attend clinic with Coop too. Last week she was getting over the shingles and couldn't go to clinic as a precaution to the other patients there. Good old stress induced shingles...Ugh....just what every parent with a baby and an immunocompromised kid needs, right?  Cooper actually got out on his bike during the few days we had after he didn't make counts. We figured if he was asking to go outside, he was feeling much better and we had a pretty good feeling he would get going on Wednesday.  Cooper had the choice to leave clinic and keep his port accessed at home for the home care nurse to come out and admin
Read more

Snacks, Hair, and a Dose of 5 Year Old Perspective

Everyone thinks their own kids are the best. That's every parent's right as their guardian.  We are obviously bias but we can't help but look at our kid in absolute awe with how he is dealing with this situation. Nothing like your 5 year old setting the record straight with a bunch of grownups who feel like they're trying to get their act together. From the beginning we have done our best to be completely honest with Cooper about what is happening to him. Granted, this is a tall order to try to make sure to explain a life threatening disease in a developmentally appropriate way. Those of you who know Cooper well, know that he is a very literal kid, a straight shooter. You'd better be honest with him or he will be the first one to call your bluff if you aren't. It is this wonderful quality that Cooper has that will most likely earn all of his classroom teachers a nice bottle of merlot for Christmas. Cooper is also a very observant kiddo, he's a watcher...he
Read more