Deep Creek Lake

After Cooper immunoglobulin, a super fun scare and a 103.5 fever with Evyn, and Kristy's concert week. We GOT AWAY!!!! This is the first time we have gone away as a family of 4...EVER. We went to Deep Creek Lake. The Believe in Tomorrow Children's Foundation is a wonderful foundation that we are a part of and they provide respite housing for immediate families only to use in the middle of treatment. We can use any of the vacation houses free of charge every 3 months during treatment. It is so nice to be able to get away and not have to think about the expense, especially since often taking off of work requires time without pay. This foundation does so much to help the kids by providing amazing experiences and family time. It was much needed and much appreciated.













Cooper got to do a ropes course, the mountain coaster, mini golf, went hiking, and we also got to hang at the beach for a bit. We had never been to Deep Creek before and it was awesome! The Believe In Tomorrow House was just amazing and just what we needed.




Comments

Post a Comment

Popular posts from this blog

Beginning of the Road

18 Aug 2018 So it begins... There are certain days in your life that you will always remember - wedding day, birth of a child, the day you bought your first home, graduations - you get the idea. Unfortunately not all these dates are remembered for a positive reason... It is with absolute heartbreak that Kristy and I want to let our family, friends and loved ones know that on Aug 18 2018, our son, Cooper was diagnosed with child leukemia.  I cannot put into words how we are feeling or even if we have fully comprehended what this means for us as a family.  As most of you readers probably know, Kristy and I were blessed to welcome Evyn Wylde Trueblood into the word on 15 Jul 2018. So adjusting our lives to a newborn and a family of 4, to now have this news is more than we ever thought we would be able to handle. I am opening this page mainly for three reasons.  First and foremost to remember Cooper in your thoughts and prayers.  Our God is the creator, great healer and more impo
Read more

Last big intensification push: It has begun

Image
So on Friday we did not make counts to start the second part of intensification, so we went in Wednesday and Coop made counts like a boss! It was such a long clinic day, but we were thankful to go home. We were the first ones there and the last ones to leave. We barely got out before they would have had to admit us to inpatient. Luckily this week, Kristy was able to attend clinic with Coop too. Last week she was getting over the shingles and couldn't go to clinic as a precaution to the other patients there. Good old stress induced shingles...Ugh....just what every parent with a baby and an immunocompromised kid needs, right?  Cooper actually got out on his bike during the few days we had after he didn't make counts. We figured if he was asking to go outside, he was feeling much better and we had a pretty good feeling he would get going on Wednesday.  Cooper had the choice to leave clinic and keep his port accessed at home for the home care nurse to come out and admin
Read more

Snacks, Hair, and a Dose of 5 Year Old Perspective

Everyone thinks their own kids are the best. That's every parent's right as their guardian.  We are obviously bias but we can't help but look at our kid in absolute awe with how he is dealing with this situation. Nothing like your 5 year old setting the record straight with a bunch of grownups who feel like they're trying to get their act together. From the beginning we have done our best to be completely honest with Cooper about what is happening to him. Granted, this is a tall order to try to make sure to explain a life threatening disease in a developmentally appropriate way. Those of you who know Cooper well, know that he is a very literal kid, a straight shooter. You'd better be honest with him or he will be the first one to call your bluff if you aren't. It is this wonderful quality that Cooper has that will most likely earn all of his classroom teachers a nice bottle of merlot for Christmas. Cooper is also a very observant kiddo, he's a watcher...he
Read more